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Special kids with special moms
16 May 2006

Manila, Philippines: Special kids need special moms.

The Katipunan ng mga Magulang ng mga Batang May Kapansanan (KMBK) is a volunteer group of some 20 women who take care of special children and, sometimes, even their parents.

The women themselves are moms to differently abled children (the politically correct term for the disabled).

For the past four years, they have been quietly knocking on doors of households in Mandaluyong City to find special children who are neglected due to either the indifference or poverty of their parents.

“It’s in our hearts to help because our children are also disabled. We know how it feels,” volunteer mother Gilda Mendoza says. Her 15-year-old daughter is deaf and they communicate by sign language.

Mendoza shares with the Inquirer her shock, despair and, eventually, her coming to terms with the reality that her child is not like the others.

KMBK president Jean Gonzales recalls the day at the Philippine General Hospital the doctor confirmed that her son Paolo was autistic.

Autism is a developmental disability which affects verbal and nonverbal communication and social interaction, generally evident before age 3.

Earlier, Gonzales had been told by her husband’s aunt from Canada -- who had twins with autism -- that Paolo exhibited similar symptoms.

When she found out that Paolo would not be like his siblings, what kept Gonzales going was the thought that her child was not alone, that there were others like him, and that he had a chance of blending in society.

“I thought, if other people could accept that their children were special, so could I. If I do not accept my own child, who will?” Gonzales says.

Journey of love

Paolo’s plight has since become a journey of love for Gonzales -- a daily lesson on how to embrace people for who they are and help them be what they can be.

Eleven years later, the mother of six is not only raising and teaching Paolo. She has also extended the boundaries of her love to other special children and their parents who, after all these years, still have not been able to cope.

Every week, the KMBK gives free therapy to around 50 special children. The young ones get physical therapy as well as informal reading and writing sessions.

Every day, mothers from the KMBK go around the 11 barangays of Mandaluyong to pick up the special children and take them to the day care center. They start out as early as 8:30 a.m., walking house-to-house because the women do not have money for the P12 tricycle ride or P7.50 jeepney fare.

Ignored

The KMBK has a small fund, but it is for the snacks of the kids and the therapist-trainer from Reach Foundation, a nongovernment organization that trains volunteer mothers in therapy.

Most of the women barely have enough money for their own families.

Gonzales’ husband, for example, is a parking valet who works three days a week with a take-home pay of P300 a day. Gonzales herself cannot work since she devotes her time to her six children and the KMBK’s special wards.

The KMBK volunteers, however, forget their problems when they pick up the special children. When they arrive at their homes, they usually find the special child huddled in a corner, almost nonexistent to the other family members.

“Most parents focus on their normal children and tend to ignore the disabled one. It really makes me cry sometimes,” Gonzales says.

Love and acceptance

Marieta Cruz, whose 13-year-old son has cerebral palsy, is only too familiar with the ill-treatment received by special children. Her son, a fourth grader in a regular public school, has been called pilay (crippled) and bading (homosexual) because of how he walks.

Despite the taunts, Cruz knows her son is still more fortunate than others because he is loved and accepted by his family. Cruz herself diligently teaches him so he can catch up in school.

“Some people have told me not to send him to school because he would be useless anyway. Some are afraid to go near him because they think special kids could turn violent and hurt them,” she says.

Of the volunteer moms, Cruz is known to be an enthusiastic and patient teacher. She revels at seeing special kids learn to hold pencils and memorize numbers and the alphabet.

Little things

It’s little things like this that make a difference for mothers like Norma Veruna, 39, who has spent the past 10 years attending to her 11-year-old son Norman.

The boy suffers from a still unknown developmental disorder that prevents him from speaking whole words. He lacks the liveliness of kids his age and spends his days just sitting or lying in bed.

Norma learned of KMBK through a neighbor and visited the day care center for the first time last week. She says she has always been the lone caregiver of Norman, feeding him, massaging him and responding to his cries.

While she does not yet know what to expect from the organization, she is positive that it would be good for her family. Her husband, a construction worker, can barely provide for their needs. It means a lot that Norman can avail himself of therapy and classes for free.

“Some parents eventually come to terms with the condition of their special children when they see how other people care for them. Sometimes, it’s out of shame that they do not give as much attention -- being the parents. But most of the time, it’s because they see that the children are loved,” Gonzales says.

From: Philippine Daily Inquirer, Manila, Philippines
© Philippine Daily Inquirer


  User Comments        Add a comment

Posted by: melanie    Date: 16 May 2006 21:44   From: ireland
i really admire what you are doing and it is people like you who really inspire me and give me the hope that this world can be a better place if we could all come together and help the less fortunate just like you are doing and i am now looking for ways i can help out and in the spare time i have i will use to help others, and try set an example for my friends who will hopefully do the same as me, in the way that you have encouragedme to do so. best of luck melx

Posted by: hya   Date: 18 June 2006 14:48   From: philippines
i hope someone could help me to get in touch to any one of the members of Katipunan ng mga Magulang ng mga Batang May Kapansanan (KMBK).

thanks!


Posted by: Joyce   Date: 21 June 2006 03:48   From: Philippines
This is a praiseworthy thing to do. I really admire people who serve because they feel that the world needs them without asking anything in return. I am always interested and engaged in volunteer works especially with children and it gives me a certain degree of happiness to know that despite of the meager resources that you have you are able to give yourself and time for these children. I salute you!

Posted by: jane   Date: 06 July 2006 05:03   From: phil
ma'am...will u let me know what facilities you guys are in need of. i am a 5th yr architecture student who's currently working on my thesis. i would like to conduct a study on your need for facilities.

Posted by: Santiago Calderon   Date: 22 July 2006 07:49   From: The Philippines
If you have an information where I can place a little part of my blessing. please provide me a way. Or their address. Thank you.

Posted by: dale   Date: 24 July 2006 13:27   From: south africa
i am looking for a centre conducting research/work on autism and autistic chilren where i might be able to volunteer. Any continent,country,town. any help?

Posted by: Bambi   Date: 19 September 2006 05:48   From: Rizal, Philippines
I'm a mother, though I don't have a differently abled chiled, still I'd like to volunteer. Please tell me...thank you.

Posted by: alky   Date: 04 November 2006 06:41   From: Makati, Philippines
I am an australian, recently arrived in Manila and will be here for three years. I am very interested in the work you are doing. How do I found out more about getting involved?

Posted by: Mae   Date: 12 November 2006 06:44   From: marikina city
Having s special child would require a special mom or special parents, we have two special kids who taught us a lot of things, 'though their language is limited, we communicate by hugging, kissing and the most important thing is that they both could say i love you...those are milestones, accomplshments given by God.

Posted by: danie   Date: 14 June 2007 16:46   From: 
thank you. i know all the parents of children with special needs would also share with me the sincerest and warmest gratitude we can give you. and prayers too.

Posted by: Gina   Date: 22 November 2007 16:13   From: Philippines
I am a working mother of there boys age 7,5,1 none of them are special. I may not have a special child but I am a mother also and I could feel those mothers out there who maybe cannot accept whats happening with their kids because our children deserves everything that is good and if we could shelter them from everything that are harmful to them, we mothers will personally do it for them. But we thank those volunteers who are there to help and to fit in as mothers to the children. Sometimes people come to a point that they feel theres something still lacking inside them even if they have the good things in life. Maybe this is their calling to help or my calling too. Is there something I could do to help just tell me especially this Christmas Season, I am more than willing.

Posted by: Sunny   Date: 03 March 2008 12:16   From: Korea
I was touched by this article, despite these difficulties, I hope they can keep up with their good work.




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